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Showing posts with label fight against monster. Show all posts
Showing posts with label fight against monster. Show all posts

Thursday, May 2, 2013

Not cancer

Dylan's surgery was scheduled after the labour day holiday on 2 May early morning.

We had to get the little brave boy up and ready very early in the morning. Fortunately he was in a cheery good mood.

Georgie gonggong was very sweet to agree to be there with us at Mount Elizabeth Hospital. Hubby felt stronger and more assured with gonggong around. In case we need to make any difficult decisions.

After days of crying, both Hubby and I are now a lot calmer. I believe that the days in our lives may change, but the lives in those days don't have to; so long as we stay close to the important things in life - family, love and faith. Together, we can overcome everything.

After all the administrative processes, the little boy was ready to go to the operating theatre. Fortunately, Hubby was allowed to be with him all the way till he's asleep.

The anesthesist Dr Khoo was a very nice and patient lady. She puts us at ease while explaining the procedures. She was extremely reassuring and we trust Dylan will be in good hands. Pearlyn and Dr Chui have been providing us with a lot of support and reassurance as well.

Dr Chui informed he will call me once he has the frozen sample biopsy result, so as to discuss next course.of action. It'll most likely be 45 mins after op started.

Hubby, George daddy, mom and I waited outside the operating theatre. 45 minutes passed and still no news from Dr Chui, I started to get very nervous and was pacing up and down along the corridors.

Over an hour has passed and still no news, did something happen to my baby?

Finally my phone rang and I answered with shaky hand. It was Pearlyn and she asked me to hold the line as she passed the phone to Dr Chui. I held my breath and all I could remember was him saying, "Good news Mrs Lee, it's not cancer!" He went on to tell me some medical terms which didn't register in me. I broke into tears before stammering the news to the rest.

It's a miracle!!! It's not rhabdyomasarcoma!!! My little one is fine!!!

The lump turned out to be vascular malformation. It's a lump of malformed blood vessel which should be present since birth. Blood continued to flow into these vessels causing a clot and swell. Because of abnormal blood flow in the testicles, the CT scan picked up as cancerous activity.

The only bad news is we may not be able to claim insurance since it's a congenital condition.

Whatever it is, I can't be more thankful than I already am.

This incident taught me about family and love. We could not have survived this without the support and love from our family. They made us stronger.

I truly believe in angels now. They are in the forms of doctors, nurses, friends, colleagues and loved ones. All our friends, colleagues and family, regardless of race and religion, were sending us well wishes and keeping us in their prayers.

We couldn't thank Dr Chui, Dr Khoo, the nurses at Surgery for Children - Pearlyn and Sandra, and the nurses at Mt E who looked after Dylan after his op enough for their professionalism, care and concern. We need to thank Dr Goh Han Meng of SBCC clinic for keeping us in his thoughts and wanting to visit the little boy in hospital. Thank you to our dear Dr Chong as well - she was very worried after learning the news from Dr Goh and called me one late night after her clinic to check on the little boy.

We will now work on getting the little one to recover from his surgery. I'm sure he'll be up and running very soon.

Monday, April 29, 2013

Spending time with our little baby

We just needed time and space for the news to settle in.

I may be crying. I may be devastated. But I will not be defeated. I'm going to fight this monster bravely with my son. We will triumph.

We just want to spend all our time with him. I just want to continue to make and collect beautiful memories with him.

Every moment. Every breath. Every smile. Every kiss. Every hug. So precious.

We went back to meet Dr Chui today to discuss the care plan with him. We have decided to leave our little darling in his good hands.

Dr Chui decided to order a PET/CT scan the next day and for the surgery to take place on 2 May.

Sunday, April 28, 2013

The series of most unfortunate events

Dad has been thinking that Dylan's testicles look imbalance and urges us to go to the doctor. The rest of us just brushed it off as we didn't think much of it.

Dylan happened to have a bad case of rash, so I took him to Dr Chong on a Friday (19 Apr). Dad again reminded me to get the doctor to check his testicles.

It's scary to think that I almost left the doctor's room forgetting to do that. Luckily mom reminded me and Dr Chong checked. She found some swelling which can be hernia or cysts. She suggested we go SBCC to follow up with the paediatrician.

Dr Chong gave us 3 doctors to choose from. A stroke of fate led us to Dr Goh Han Meng. He saw us on 24 April and examined Dylan very thoroughly. He looked worried but was kind not to scare me. He said he can't established that it's hernia or cysts. He suggested that with go to a paed surgeon for him to order ultrasound. He recommended us to Dr Chui Chan Hon who has operated on his daughter.

Seeing Dr Goh's expression scares me, I know something must be wrong. I called the clinic and got an appointment on Friday (26 April).

Dr Chui examined and ordered an ultrasound. That's how the world crashed down on us.

It's a tumour. Most likely rhabdomyosarcoma, cancerous. Dylan will need a surgery and chemotherapy after that. Looking at my son, I just can't associate him with cancer. So lively, adorable and chatty.

Dr Chui wanted us to take time to let the news settle in as well as seek second, third opinions before deciding. He managed to get us an appointment with Dr Tricia a paed oncologist at NUH that same afternoon. Dr Tricia recommended the same course of action.